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Sharee Juarez
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Is Crouzon syndrome a curable disorder?

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The crouzon syndrome is a genetic condition that affects the shape of the head and face of a child.

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  1. Crouzon syndrome affects every child differently. Treatment of Crouzon syndrome may include surgery. This is to improve symptoms, prevent complications, and help physical and mental development. If the fused sutures are causing intracranial pressure, this may lead to brain injury. This is treated with craniofacial or open vault surgery. The purpose of surgery is to ensure there is enough space in the head for the brain to grow. It may also improve the appearance of the child’s face and head.

  2. While there may not be a full treatment for the disorder yet, none that I know of— The abnormal shape of the face can also affect the position of the teeth and the occlusion. Many children have an under bite, as well as misaligned teeth. Delayed tooth eruption is also common for children with Crouzon syndrome. Your child should visit a pediatric dentist when the teeth start to come in, no later than 2 to 3 years of age.